Friday, March 11, 2016

"I'm like...angry at numbers."

These words, spoken by Butt-Head, the bard of my generation, used to make me laugh.  They conjured my struggles with long division, algebra, and my difficulty having any concept of time.  Numbers were never my friend and I could never make them go away.  They used to annoy me, but now they truly anger me.   

Numbers effin' haunt me.  I did my first triathlon at the age of 34, after having spent my youth being decidedly unathletic.  Before I started training, I had never run more than one mile, and that was ONE time in 10th grade gym class.  So when I crossed the finish line, I felt amazing!  I did it!  I could do anything!  And then I made the mistake of looking at the race results.  I had finished dead last in my age group.  Effin' numbers.  I then tried to comfort myself with another number:  I had actually come in ahead of another woman who was 10 years my junior, but decided she must have run the entire race while carrying a full bag of groceries.

I used to joke that I became an English teacher in order to avoid numbers, but there's no avoiding numbers.  I love my job, but I HATE grading essays.  I hate putting a number value on their work.  I would much rather write comments all over it and hand it back.  "Here you go!  This is what you did well, and this is where you need to improve."  No numbers, just feedback, because numbers are heartbreaking.  I remember sitting with a weepy girl who was so frustrated that she wasn't getting A's.  (Gone are the days of rewarding effort; we're required to grade off a standards-based rubric.  Thanks, Common Core!)  She was working so hard, but she wasn't meeting the benchmarks for an A.  I remember taking out her portfolio and spreading her papers all over the table.  Her early writing was really weak and unfocused and now she was doing solid B work.  I tried to get her to see past the grade and look at the big picture. 
"Look," I said to her.  "Look how far you've come.  You've gotten so much better at this!  Can you see that?  Can you see how hard you've worked and how much you've improved?  You should be so proud!"  I was rewarded with a sniffling, teary attempt at a smile, but I don't know if I really got through.

Which brings me to my current anger at numbers.  In advance of my son's re-eval meeting, I was sent his test scores.  They wanted benchmarks, and I understand that.  Still, it's hard.  See, I try really hard to focus on the big picture.  I remind myself how happy I was when, at two, my son learned to sign "more" and "more milk," because he was effectively communicating his needs in a way that was much nicer than screaming and throwing his dinner against the wall.  Now he can make such requests as, "Go to the restaurant for pizza and pasta and cheeseburgers and french fries and chocolate milk and ice cream, PLEEEEEEEZE!"  Now that's progress!

So to see, in black-and-white, that my son scored below the first percentile in linguistic concepts and sentence comprehension was a gut punch.  To see, in black-and-white, that he still exhibits "severe receptive, expressive, and pragmatic language deficits"--even after all the hard work from everyone involved--is very, very hard.  And I'll admit it.  I cried.

Black-and-white sucks.  Numbers suck.  I have to talk myself down.  I have to focus on the big picture.  I have to remind myself of my own words:  "Look how far he's come!  He's worked so hard!  You should be proud!"

And I am proud, because we're all working hard, and he is getting better.

Also because he can say, "Fuck it!" like a champ.


  1. I came to your blog via a comment you left on another autism blog. I can understand your frustration and heartache. Our almost eight year old was diagnosed with Sensory Processing Disorder and speech issues when he was just over four years old. It was hard seeing his issues in black and white, and I cried a lot. He has been in ST and OT ever since, and just had a plethora of tests (eight in all, NOT counting OT) done through the school for his re-evaluation. The first tests graded, so to speak, were his speech evaluations. He has made a lot of progress in speech, but we knew he had a long ways to go. We didn't realize how long until we read the reports. He has the articulation level of a three year old (granted, he had three teeth removed two years ago when he broke them at the root line, and they haven't come in yet). His oral expression score from the OWLS-II test put him at the percentile rank of 1, and his overall language composite standard score put him in the 10th percentile. Well, damn. In the end, he had two more speech/language disorders added to his repertoire of speech issues and was finally officially diagnosed with autism. Somehow, though, seeing the autism test scores didn't bother me so much as the speech ones. I guess I still have guilt that I didn't fight back when a doctor told us our son was lazy in his speech (at two years old) and I didn't agree. It was two years before his speech issues were recognized by his regular doctor, two extra years he could have been in therapy but wasn't. Oh well, at least he's getting the help he needs now!

    1. Oh my gosh, how frustrating. Those tests hurt, man. I'm glad he's getting help now! Hugs.

  2. Some days, it's really hard to see past the numbers that everyone else is judging him by. I feel this one deeply❤

  3. Some days, it's really hard to see past the numbers that everyone else is judging him by. I feel this one deeply❤

  4. I hate those tests. Why not give me a nice papercut and pour salt and lemon juice in the wound?

    I'm giving a testimony about Dr. WILLIAMS for the great deed he have done for my family, he has
    the natural cure to autism, he cured my son from autism ,
    though I went through different website I saw a testimonies about this
    Dr Williams, I was like: 'Dr Williams have the autism cure why are
    people still suffering from it?' I thought of it, then I contact Dr Williams, I didn't believe him that much, I just wanted to give him a try, he replied my mail and Needed some Information about my son, then I sent them to him, he prepared the (CURE) and sent it to me through Courier Service he gave my details to the Courier Office, they told me that 1-3 days I will receive the package and my son took the medicine as prescribed by Dr Williams and i took my son for check-up 1 week after finishing the medicine, then the autism was not there anymore, if you are suffering from autism you can also contact him on his via email address: for his help.

  6. As a sign of gratitude for how my son was saved from autism, i decided to reach out to those still suffering from this.
    My son suffered autism in the year 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication, , and he always complain of poor eye contact . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to autism . I never imagined autism has a natural cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months time he was fully okay even up till this moment he is so full of life.autism has a cure and it is a herbal cure contact the doctor for more info on on how to get the medication. Thanks for reading my testimony .